Sponsor Noah S

Child’s Name: Noah S

Child’s Condition: Cerebral Palsy

Attended Heel & Toe Since: 

Receives: Massage & Movement Therapy

£
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Heel & Toe Children's Charity
40 Front St, Pelton,
Chester le Street DH2 1DE

All contributions will be gratefully received.

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Donation Total: £5 One Time

Noah’s Story

Noah was born a twin, and after suffering from twin-to-twin transfusion syndrome, and mam being in labour for nearly 3 days, he and his twin Jackson were delivered at 26weeks gestation via emergency C-section. Noah weighed only 800g. He had to be resuscitated for 15 minutes then spent the first 14 weeks on his life in NICU, with the first 6 weeks of that being ventilated and oscillated. At 6 weeks old he suffered from bilateral brain haemorrhages and at 18months old he was formally diagnosed with Cerebral Palsy. This being on top of chronic lung disease, hydrocephalus, epilepsy and a slight hearing impairment! He also had to have a blood transfusion, x rays and a brain ultrasound. In his short 2 years of life Noah has undergone several surgeries including stoma and stoma reversal, bilateral hernia removal, and bowel obstruction surgery, as well as suffering from a stroke.

It is with great sadness that Jackson passed away at 5 days old, but the family always talk about him with Noah.

At 114 days old Noah was allowed to go home with his family. Noah is tube fed, and currently requires a standing frame and postural seating. He is non-verbal but can make several sounds, and he thoroughly enjoys interaction and people talking in high pitched voices.

Sponsor Noah S