Sponsor Nico

Child’s Name: Nico

Child’s Condition: Titinopathy (a form of muscular dystrophy) and Congenital myopathy (which causes muscle weakness and hypotonia),

Attended Heel & Toe Since:

Receives: CE Therapy (Conductive Education)

Sponsor Nico

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Heel & Toe Children's Charity
40 Front St, Pelton,
Chester le Street DH2 1DE

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Donation Total: £5 One Time

Nico’s Story

Nico was delivered at full term via a planned C-section as he presented as breech. He weighed 2.6kg born and due to weak breathing he required oxygen and frequent suctioning. He also has to be tube fed as has swallowing problems due to his diagnosis of Titinopathy (a form of muscular dystrophy) and Congenital myopathy (which causes muscle weakness and hypotonia), however he didn’t actually receive these diagnoses until he was 1 year old after being allowed to go at 2 months old. He also suffers allergies to cow’s milk and eggs.

Nico is non-verbal but can use Makaton to currently sign thank you, more, hot and cold. He also relies on pointing and noise making to get his needs met. He enjoys anything that spins fast, puzzles and Lego but does not like sitting on things that rock or experiencing new textures especially if muddy or wet.