Project Description

Sponsor Freddie T

Child’s Name: Freddie T

Child’s Condition: Freddie has a condition called SMA Type 2 (Spinal Muscular Atrophy)

Attended Heel & Toe Since: 2019

Receives: Physiotherapy

Sponsor Freddie T

£4,714 of £2,800 raised
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Gift Aid does not cost you a penny more, but can add an additional 25p to every £1 you donate. When Heel & Toe Childrens Charity receives a donation from a UK taxpayer, we're entitled to claim an amount of tax (calculated at the basic rate of income tax in that year) paid on that donation. Once you have given your permission for us to do this on your behalf, there is no need for you to do anything else.

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Donation Total: £5 One Time

Freddie’s Story

On the 28th of May 2019, Freddie was diagnosed with SMA type 2 (Spinal Muscular Atrophy) at just 12 months old.

SMA is a rare genetically inherited neuromuscular condition. It causes progressive muscle weakness and loss of movement due to muscle wasting (atrophy). This devastating disease that robs individuals of their independence.

There is currently no cure for SMA, however 13 days prior to Freddies diagnosis a groundbreaking new treatment was approved for use in England! (Nusinersen – SPINRAZA). Evidence suggests that this treatment stops disease progression and allows individuals to regain previous lost muscle power if dosed early!

Freddie started this life changing treatment on the 7th October 2019. This is still not a cure for SMA. Freddie will always live with the disease, but we now have hope for the future.

Freddie is such a clever little boy, he loves tractors, cars, diggers,rockets and dinosaurs. He loves to go swimming and to nursery were he can play with his friends.