Project Description

Child’s Name: Evie-Jean

Child’s Condition: Noonanlike Syndrome, Epilepsy and visual and hearing difficulties

Evie-Jean was born full term via C section. She had mild Hydrocephalus, and despite other problems being noticed from birth, she wasn’t diagnosed with Noonanlike Syndrome until 16 months old.

Attended Heel & Toe Since: 2017

Receives: Conductive Education & Physiotherapy

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Heel & Toe Children's Charity

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Evie-Jean’s Story

Evie-Jean also suffers from Epilepsy; has a gastrotube fitted as well as having a milk intolerance; and wears hearing aids due a hearing loss. She also suffers from some visual problems as her brain does not correctly process what she sees. At present Evie- Jean also requires CPAP overnight. We will keep you updated with her progress.

Evie Jean’s Progress Update

We are so pleased to be able to show the the moment that Evie Jean took her first steps towards her mum Hayley. This amazing small step happened in Evie Jean’s Physiotherapy session with our Lead Physiotherapist – Jo.

Well Done Evie Jean!