Child’s Name: April

Child’s Condition: Emmanuel Syndrome

Attended Heel & Toe Since: 2017

Receives: Conductive Education, Physiotherapy

April received a formal diagnosis of Emmanuel Syndrome at 1 month of age. She also has bilateral moderate hearing loss as well as dislocated knees.

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Donation Total: £25 One Time

April’s Story

During pregnancy April was carried Breech, and suffered a pulmonary atresia as well as being small for her dates. She was delivered by emergency C-Section and spent her first 7 months in hospital. She was tube fed and had to use a C-PAP from birth. She received a formal diagnosis of Emmanuel Syndrome at 1 month of age. She also has bilateral moderate hearing loss as well as dislocated knees.

In her short life she has had to undergo numerous procedures and operations including tracheostomy; fundoplication; gastrostomy; ileotomy; and 4 bowel operations.

April requires support for all of her daily life from feeding and dressing to communicating and playing. She loves lights, music and singing, and enjoys sensory activities. She dislikes being restricted and loud, sudden noises.